In 2011, Dr. Femida Gwadry-Sridhar founded Pulse Infoframe to fill a research gap that neglected millions: an inability to collect standardized, useful real world evidence in rare disease, cancer, and chronic condition populations. To increase the usefulness of this data, researchers needed to combine it with more common forms of data, such as medical reports. Collecting such sensitive data also meant developing a platform that would follow stringent regulatory guidelines, that would make it useful to researchers and advocates around the world.
But first and foremost, Dr. Gwadry-Sridhar wanted the collected data to answer what patients wanted to know:
- What effective treatments are there for my disease?
- What effective therapies exist?
- Is a cure possible?
- Are studies underway that I could take part in?
